resources2023-11-28T15:26:42+00:00

resources

Accessing services and support for your family member can be a daunting task.  We’ve divided up our resource listing by topic to make the search a bit less overwhelming.  We update our resource listing regularly to ensure information is as current as possible.

If we missed a resource you think should be included, let us know by emailing the information to ddavis@jeremiahtreefoundation.org.

Pediatrics, Intellectual/Developmental Disabilities/Special Healthcare Needs

WV Children’s Health Insurance Program
#2 Hale Street, Suite 101, Charleston, WV 25301
1-877-WVA-CHIP | https://chip.wv.gov/Pages/default.aspx

WV WIC Program
350 Capitol Street, Room 515, Charleston, WV 25301-3715
304-558-0030 | dhhr.wv.gov/WIC/apply/Pages/Do%20I%20Qualify%20For%20WIC.aspx    

SNAP Supplemental Nutrition Assistance Program
350 Capitol Street, Room 730, Charleston, WV 25301
1-877-716-1212 | https://dhhr.wv.gov/bfa/Pages/default.aspx

WV Department of Health & Human Resources
350 Capitol Street, Room 427, Charleston, WV 25301

Ronald McDonald Houses in West Virginia

Children’s Hospitals in West Virginia

  • Hoops Family Children’s Hospital
    1340 Hal Greer Blvd, Huntington, WV 25701
    304-526-2000 | hoopschildrens.org

Intellectual/Developmental Disabilities

WV Parent Training & Information, WVPTI
99 Edmiston Way, Suite 101-102, Buckhannon, WV 26201
1-800-281-1436 | www.wvpti-inc.org

Parent Educator Resource Centers, PERCs
1900 Kanawha Blvd East, Charleston, WV 25305
1-800-642-8541 | wvde.state.wv.us/osp/perc.html

WV Family Resource Network
1501 Second Street, Moundsville, WV 26041
304-845-3300 | wvfrn.org

Disability Resource Library
959 Hartman Run Road, Morgantown, WV 26505
304-293-4692, x.60645 | cedwvu.org/resources/disability-resource-library

WVDHHR Bureau for Medical Services (BMS)
350 Capitol Street, Room 730 Charleston, WV 25301
304-205-6357

Impact WV, Support for families dealing with NAS
959 Hartman Run Road, Morgantown, WV 26505
304-293-4692 | wvimpact.org

Lily’s Place-Neonatal Abstinence Syndrome Center
PO Box 2, Huntington, WV 25706
304-523-5459 | https://www.lilysplace.org/

  • Lily’s Place Family Center
    681-432-0600

WV Developmental Disabilities Council
110 Stockton Street, Charleston, WV   25387
304-558-0418 | ddc.wv.gov/Pages/default.aspx

Disability Acronym List
www.cedwvu.org/resources/disability-acronym-list

People First Self Advocacy
1917 Dudley Avenue, Parkersburg, WV 26101
304-422-3151 | peoplefirstwv.org

Astrive Advocacy
40 Elk Run Road, Belleville, WV 26133
304-483-6172 | www.astrive.org

Disability Rights of WV
5088 Washington Street W, Suite 300, Charleston, WV 25313
1-800-950-5250 | www.drofwv.org

Legal Aid
922 Quarrier Street, 4th Floor, Charleston, WV 25301
800-642-8279 | https://legalaidwv.org/about-us/our-locations/

Mountain State Justice
1217 Quarrier Street, Charleston, WV 25301
1-800-319-1732 | https://mountainstatejustice.org/

The Arc of the Mid Ohio Valley
1917 Dudley Avenue, Parkersburg, WV 26101
304-422-3151 | thearcmov.org

WV Olmstead Office, compliance with ADA
State Capitol Complex, Building 6, Room 817-B, Charleston, WV 25305
304-352-0786 | www.wvdhhr.org/oig/olmstead.html

WV Legislature
1900 Kanwha Blvd E, Room W-334, Charleston, WV 25305
304-347-4836 | www.wvlegislature.gov

WV Voting Resources, WVU CED
cedwvu.org/resources/voting

WV Department of Education, Special Education
Building 6, Suite 750 1900 Kanawha Blvd East, Charleston, WV 25305-0330
1-833-627-2833 | 304-558-0459 | wvde.us/special-education

WV Head Start
PO Box 361, Summersville, WV 26651
304-872-0040 | www.wvheadstart.org/

WV Student Success Project
wvstudentsuccess.org/

A Parent’s Advocacy Guide to Special Education
ddc.wv.gov/Documents/2nd%20Edition%20Parents%20Advocacy%20Guide.pdf

FAST Program-Family Advocacy, Support, & Training
Charleston, WV 25301
1-800-642-8279 | legalaidwv.org/our-programs/legal-services/special-education-fast/
legalaidwv.org/our-programs/legal-services/special-education-fast/

Establishing IEP-Rights of Special Education Students
legalaidwv.org/legal-information/establishing-an-iep-rights-of-special-education-students/

Help! The School and I don’t agree on my child’s IEP
www.drofwv.org/help-don-t-agree-with-iep

WV Parent Training & Information
99 Edmiston Way, Suite 101-102
www.wvpti-inc.org/pti/

WV Advisory Council for the Education of Exceptional Children
Marshall University Graduate College, 100 Angus E. Peyton Drive, South Charleston, WV 25303
304-796-1992 | wvde.us/special-education/family-and-public-partnership/west-virginia-advisory-council-for-the-education-of-exceptional-children/

H.E.L.P at Marshall University
520 18th Street, Huntington, WV 25703
304-696-6256 | www.marshall.edu/help/

WV Autism Training Center, Marshall University
Old Main 316, 1 John Marshall Drive, Huntington, WV 25755
304-696-2332 | www.marshall.edu/atc/

WV Center for Excellence in Disabilities
959 Hartman Run Road, Morgantown, WV 26505
1-888-829-9426 | www.cedwvu.org

Appalachian Reading Center, tutoring-language based learning disabilities
429 3rd Avenue, South Charleston, WV 25303
304-744-8188 | www.appalachianreading.org

WV SenseAbilities, children who are Deafblind
304-822-4890 | wvde.state.wv.us/osp/learnwithus.html

Astrive Advocacy
40 Elk Run Road, Belleville, WV 26133
304-483-6172 | www.astrive.org/special-education

WV Adult Education
Building 6, 1900 Kanawha Blvd East, Charleston, WV 25305
1-833-627-2833 | 304-558-1055 | wvde.us/adult-education/

Pathways to the Future WV
https://www.pathwayswv.org/

WV Statewide Independent Living Council
5010C Fairview Avenue, Institute, WV 25112
304-766-4624 | https://wvsilc.org/

Mountain State Centers for Independent Living
821 4th Avenue, Huntington, WV 25701
304-525-3324 | https://mtstcil.org/

Northern WV Center for Independent Living
601-603 East Brockway, Suite A, Morgantown, WV 26501
1-844-212-3464 | http://nwvcil.org/state-centers-for-independent-living/

LiveAbility
109 Randolph Avenue Elkins, WV 26241
304-636-0143 | http://liveabilitywv.org/

Appalachian Center for Independent Living
4710 Big Chimney Blvd, Suite C, Charleston, WV 25302
304-965-0376

WV Olmstead Transition & Diversion Program
State Capitol Complex, Building 6, Room 817-B, Charleston, WV 25305
304-352-0786 | https://www.wvdhhr.org/oig/olmstead.html

WV Division of Rehabilitation Services
601 57th Street SE, Charleston, WV 25304
1-800-642-8207 | https://wvdrs.org/

WV Association of Rehabilitation Facilities
400 Patternson Lane, Charleston, WV 25302
304-205-7970 | https://wvarf.org/

Workforce WV
5707 MacCorkle Ave SE, Charleston, WV 25304
1-800-252-JOBS | https://workforcewv.org/

WV Career Explorer/Simulator
https://wv.headed2.com/

WVU CED, Work Incentive Planning & Assistance
959 Hartman Run Road, Morgantown, WV 26505
304-293-4692 | https://wipa.cedwvu.org/

JAN, Job Accomodation Network
PO Box 6080, Morgantown, WV 26506-6080
304-216-8189 | https://askjan.org/

EARN, Disability Inclusion in the Workplace
Cornell University 201 Dolgen Hall, Ithaca, NY 14853
607-255-7727 | https://askearn.org/

Astrive Advocacy
40 Elk Run Road, Belleville, WV 26133
304-483-6172 | https://www.astrive.org/

ACLU – Disability Rights
125 Broad Street, 18th Floor, New York, NY 10004
212-549-2500 | https://www.aclu.org/issues/disability-rights

US Dept of Labor, Office of Disability Employment
200 Constitution Avenue NW, Washington, DC 20210
1-866-ODEP-DOL | https://www.dol.gov/agencies/odep

National Organization on Disability & Employment
https://www.nod.org/

National Parent Center on Transition & Employment
8161 Normandale Blvd, Minneapolis, MN 55437
1-888-248-0822 | https://www.pacer.org/transition/

Pediatrics, Intellectual/Developmental Disabilities/Special Healthcare Needs

Children with Special Healthcare Needs – CSHCN
350 Capitol Street, Room 427 Charleston, WV 25301
800-642-9704 | https://www.wvdhhr.org/cshcn/about.asp

CDCSP, Children with Disabilities Community Service Program
350 Capitol Street, Room 251 Charleston, WV 25301
304-356-4867 | https://dhhr.wv.gov/bms/Programs/CDCSP/Pages/default.aspx

WV ABLE, tax free savings plan
1-800-439-1653 | https://wvable.com/

Pediatrics-Adolescents-Adults

WV Intellectual/Developmental Disabilities Waiver Program
https://dhhr.wv.gov/bms/Programs/WaiverPrograms/IDDW/Pages/default.aspx

Title 19 IDD Home & Community-Based Waiver
350 Capitol Street, Room 251 Charleston, WV 25301
304-558-1700 | https://dhhr.wv.gov/bms/Programs/WaiverPrograms/IDDW/Pages/default.aspx

Mountain State Centers for Independent Living
821 4th Avenue, Huntington, WV 25701
304-525-3324 | http://mtstcil.org/

WVATS Assistive Technology Lending Library
959 Hartman Run Road, Morgantown, WV 26505
800-841-8436 | https://vll.cedwvu.org/welcome.aspx

Down Syndrome Network of WV-Family Assistance & Enrichment Grants
612 D Street, South Charleston, WV 25303
304-545-6613 | http://dsnwv.org/family-assistance

WV Navigator, Health Insurance Helpline
1-844-WV-CARES | https://acanavigator.com/wv/home

WV Health Coverage Program & Services
1-877-716-1212 | https://www.wvpath.wv.gov/programs&services

WV Associations of Free Clinics
http://www.wvafc.org/

Social Security Disability Insurance
https://www.ssa.gov/disability/

Social Security Supplemental Security Income
https://www.ssa.gov/ssi/

WV Relay Services, Dial 711 to Communicate
https://westvirginiarelay.com/

I Can Connect, Phone/Email access
114 Summit Lane, Beckley, WV 25801
304-545-9170 | https://www.icanconnect.org/

EMS Communication Card
https://f15ad897-99d2-443c-96dd-9acc3acf09d1.filesusr.com/ugd/bc7ebe_ef97518ea5d84c54aa13a10a8f4ace31.pdf

Visor Card to communicate
https://cedwvu.org/media/3873/disability-visor-card.pdf

West Virginia DMV, Person with a Disability
5707 MacCorkle Avenue SE, Charleston, WV 25304
800-642-9066 | https://transportation.wv.gov/DMV/Pages/Person-with-a-Disability.aspx

Non Emergency Medical Tranportation for Medicaid members
350 Capitol Street, Room 251 Charleston, WV 25301
304-558-1700 | https://dhhr.wv.gov/bms/Members/transportation/Pages/Non-Emergency-Medical-Transportation-(NEMT)%20Information%20for%20Members.aspx

Access on the Go / WV on the Go
https://www.facebook.com/groups/1038001872893100

Accessible Attractions in West Virginia
https://wvtourism.com/information-and-press/accessible-travel/accessible-attractions-in-west-virginia/

Accessible Recreation in WV
https://wvats.cedwvu.org/media/3757/accessible-rec-guide2019.pdf

Accessible Trails at WV State Parks
https://wvstateparks.com/accessible-trails-at-west-virginia-state-parks/

WV State Parks, Accessible Travel
https://wvstateparks.com/accessible-travel

Elkins-Randolph County Tourism
https://elkinsrandolphwv.com/stories/ada-accessible-outdoor-recreation-opportunities/

School House Hotel, Greenbrier County
https://theschoolhousehotelwv.com/

Rare And Specific Healthcare Needs

National Organization for Rare Diseases – NORD
1900 Crown Colony Drive, Suite 310, Quincy, MA 02169
617-249-7300 | https://rarediseases.org/

NKH, Non-ketotic Hyperglycinemia International Family Network
https://nkh-network.org/

Dravet Syndrome Foundation
PO Box 3026, Cherry Hill, NJ 08034
203-392-1955 | https://dravetfoundation.org/what-is-dravet-syndrome/

Epilepsy Foundation
3540 Crain Highway, Suite 675, Bowie, MD 20716
1-800-332-1000 | https://www.epilepsy.com/what-is-epilepsy

Angelman Syndrome
3015 E. New York Street, Suite A2 #285, Aurora, IL 60504
800-432-6435 | https://www.angelman.org/what-is-as/

Pallister-Killian Syndrome Kids – PKS Kids
PO Box 12211 Green Bay, WI  54307
https://www.pkskids.net/

Prader-Willi Syndrome Association
1032 E Brandon Blvd #4744, Brandon, FL 33511
941.312.0400 | https://www.pwsausa.org/

Trisomy SOFT
2982 South Union Street, Rochester, NY 14624
https://trisomy.org/

Spina Bifida Association
1600 Wilson Blvd, Suite 800, Arlington, VA 22209
800-621-3141 | https://www.spinabifidaassociation.org/

Muscular Dystrophy
1016 W Jackson Blvd #1073, Chicago, IL 60607
800-572-1717 | https://www.mda.org/

Mended Hearts, Congenital Heart Defects
1579 US Highway 19, Leesburg, GA 31763
229-518-2680 | https://mendedhearts.org/story/chd-facts-and-statistics/

Cerebral Palsy Foundation
3 Columbus Circle, 15th Floor, New York, NY 10019
212-520-1686 | https://www.yourcpf.org/

National Down Syndrome Society, NDSS
1155 15th Street NW, Suite 540, Washington, DC 20005
1-800-221-4602 | https://ndss.org/about

Down Syndrome Diagnosis Network
PO Box 140, Stillwater, MN 55082
612-460-0765 | https://www.dsdiagnosisnetwork.org/

National Autism Association
One Park Avenue, Suite 1, Portsmouth, RI 02871
1-877-622-2884 | https://nationalautismassociation.org/

Autistic Self Advocacy Network – ASAN
PO Box 66122 Washington, DC  20035 | https://autisticadvocacy.org/

Mid-Atlantic ADA Center
12300 Twinbrook Parkway, Suite 350, Rockville, MD 20852
1-800-949-4232 | https://www.adainfo.org/

National Cancer Institute, Pediatrics
1-800-4-CANCER | https://www.cancer.gov/types/childhood-cancers

Moon & Back NAS Resources & Support
https://www.2themoonandback.org/

Dolly Parton Imagination Library
111 E Main Street, 2nd Floor, Sevierville, TN 37862
865-428-9606 | https://imaginationlibrary.com/

Bookshare Reader, making reading easier for all
650-352-0198 | https://www.bookshare.org/cms/

Disability Information

The ARC of the US
2000 Pennsylvania Avenue NW, Suite 500, Washington, DC 20006
800-433-5255 | https://thearc.org/

National Association of Councils on Developmental Disabilities
1825 K Street NW, Suite 1250, Washington, DC 20006
202.506.5813 | https://nacdd.org/

National Disability Rights Network
820 First Street NE, Suite 740, Washington, DC 20002
202.408.9514 | https://www.ndrn.org/

Center for Public Representation – CPR
5 Ferry Street #314, Easthampton, MA 01027
413.586.6024 | https://www.centerforpublicrep.org/

Association of University Centers on Disabilities – AUCD
1000 Wayne Avenue, Suite 1000, Silver Spring, MD 20910
301.588.8252 | https://www.aucd.org/template/index.cfm

Vision Impairment

National Center on Deaf-Blindness
141 Middle Neck Road, Sands Point, NY 11050
516-366-0047 | https://www.nationaldb.org/

InfantSEE, no cost eye assessments
234 N. Lindbergh Blvd, St. Louis, MO 63141
https://infantsee.aoa.org/parents-center/parents?sso=y

WV Relay, 711 Communicate by phone
Dial 711 | https://westvirginiarelay.com/

WV Center for Excellence in Disabilities
959 Hartman Run Road | Morgantown, WV 26505
888-829-9426 | https://cedwvu.org/

WV Relay, 711 Communicate by phone
Dial 711 | https://westvirginiarelay.com/

WVATS, WV Assistive Technology System
959 Hartman Run Road, Morgantown, WV 26505
https://wvats.cedwvu.org/

WVU Feeding & Swallowing Clinic
959 Hartman Run Road, Morgantown, WV 26505
304-293-4692 | https://cedwvu.org/feeding-swallowing-clinic/

The Arc of WV
912 Market Street, Parkersburg, WV 26101
304-422-3151 | http://thearcofwv.org/

Easter Seals WV
1305 National Road, Wheeling, WV 26003
304-242-1390 | https://www.easterseals.com/wv/

WV Autism Training Center
1 John Marshall Drive Huntington, WV 25755
304-696-2332 | https://www.marshall.edu/atc/

Community Autism Resources & Education Systems (CARES)
PO Box 1003, Hurricane, WV 25526
304-935-0410 | https://wvcaresforautism.org/

Down Syndrome Network of WV
612 D Street, South Charleston, WV 25303
304-545-6613 | https://dsnwv.org/

WV Low Incidence Disabilities
https://wvde.us/special-education/resources-sp-page/low-incidence-disabilities/

Brady Steps Foundation
Raising Awareness in our state about spina bifida
304-360-1600 | https://www.facebook.com/BradySteps/

WV Kids Cancer Crusaders
PO Box 11029 Charleston, WV 25339
304-951-9777 | https://www.wvkidscc.org/copy-of-champions-2

Walking Miracles, pediatric cancer survivors
30 Carriage Way, Hurricane, WV 25526
833-496-3398 | https://www.walkingmiracles.org/who-we-are/our-story.html

WV SenseAbilities
1900 Kanawha Blvd E Charleston, WV 25305
304-558-2696 | http://wvde.state.wv.us/osp/learnwithus.html

Olmstead Office, integrated settings
304-352-0786 | https://www.wvdhhr.org/oig/olmstead.html

WV Parent Training & Information, WVPTI
99 Edmiston Way, Suite 101-102, Buckhannon, WV 26201
304-472-5697 | https://www.wvpti-inc.org/

Mountain State Parent-Child Adolescent Network
2351 Garfield Avenue Parkersburg, WV 26101
800-244-5385 | https://www.msp-can.org/

WV Division of Rehabilitation Services
PO Box 50890, Charleston, WV 25305-0890
304-356-2060 | http://www.wvdrs.org/

Regional Transition Navigatorz
844.274.8683 | https://rtn.cedwvu.org/

Appalachian Reading Center Struggling Readers & Dyslexic
https://www.appalachianreading.org/

WV Library Commission for Blind & Print Disabled
1900 Kanawha Blvd E Charleston, WV 25305
800-642-9021 | https://librarycommission.wv.gov/special-services/Pages/default.aspx

Cabell-Wayne Association of the Blind, CWAB
38 Washington Avenue, Huntington, WV 25701
304-522-6991 Non-profit | https://www.cwab.org/

Cortical Vision Impairment, CVI Resources
http://wvde.state.wv.us/osp/vi/cvi/cvi-special-topics.html

Lily’s Place-Neonatal Abstinence Syndrome Center
PO Box 2, Huntington, WV 25706
304-523-5459 | https://www.lilysplace.org/

  • Lily’s Place Family Center
    681-432-0600

Family Caregiver Resources for WV-AARP
300 Summers Street, Suite 400, Charleston, WV 25301
1-866-227-7458 | https://states.aarp.org/west-virginia/caregiver-resources

WV Aging & Disability Resource Center
1400 Ohio Avenue, Dunbar, WV 25064
866-981-2372 | https://wvnavigate.myresourcedirectory.com/

WV Bureau of Senior Services
1900 Kanawha Blvd East, Charleston, WV 25305
1-877-987-3646 | http://www.wvseniorservices.gov/

WV Senior Legal Aid
1988 Listravia Avenue, Morgantown, WV 26505
1-800-229-5068 | http://www.wvseniorservices.gov/StayingSafe/WestVirginiaSeniorLegalAid/tabid/82/Default.aspx

WV 211
Database to find services to meet your needs
1-833-848-9905 | https://wv211.org/

WV Associations of Free Clinics
1520 Washington Street East, Charleston, WV 25311
304-414-5941 | http://www.wvafc.org/

WV Navigator, Health Insurance Helpline
1-844-WV-CARES | https://acanavigator.com/wv/home

WV Health Coverage Program & Services
1-877-716-1212 | https://www.wvpath.wv.gov/programs&services

Social Security Disability Insurance
800-772-1213 | https://www.ssa.gov/disability/

Social Security Supplemental Security Income
800-772-1213 | https://www.ssa.gov/ssi/

Grandfamilies

Healthy Grandfamilies Program
304-204-4361 | https://healthygrandfamilies.com/

Children’s Home Society of WV
1422 Kanawha Blvd East, Charleston, WV 25330
304-988-5410 | https://childhswv.org/programs-services/healthy-grandfamilies/

Kinship Care Resources – Legal Aid of WV
1-866-255-4370 | https://legalaidwv.org/our-programs/legal-services/kinship-care/

Mission West Virginia Kinship Navigator
168 Midland Trail, Suite 1, Hurricane, WV 25526
304-562-0723 | https://www.missionwv.org/kinship

WV Community Based Waiver, TBI
350 Capitol Street, Room 251, Charleston, WV 25301
304-558-1700 | https://dhhr.wv.gov/bms/Programs/WaiverPrograms/TBIW/Pages/default.aspx

WVU Traumatic Brain Injury Program
959 Hartman Run Road, Morgantown, WV 26505
1-877-724-8244 | https://tbi.cedwvu.org/

Brain Line, TBI & PTSD
3939 Campbell Avenue, Arlington, VA 22206
703-998-2020 | https://www.brainline.org/

WV 211
Database to find services to meet your needs
1-833-848-9905 | https://wv211.org/

WV Associations of Free Clinics
1520 Washington Street East, Charleston, WV 25311
304-414-5941 | http://www.wvafc.org/

WV Navigator, Health Insurance Helpline
1-844-WV-CARES | https://acanavigator.com/wv/home

WV Health Coverage Program & Services
1-877-716-1212 | https://www.wvpath.wv.gov/programs&services

Social Security Disability Insurance
800-772-1213 | https://www.ssa.gov/disability/

Social Security Supplemental Security Income
800-772-1213 | https://www.ssa.gov/ssi/

Brain Injury Association of America
3057 Nutley Street #805, Fairfax, VA 22031-1931
1-800-444-6443 | https://www.biausa.org/

Able Data
8630 Fenton Street, Suite 930, Silver Spring, MD 20910
1-800-227-0216 | https://www.brainline.org/resource/abledata

Bazelon Center for Mental Health Law
1090 Vermont Avenue NW, Suite 220, Washington, DC 20005
202-467-5730 | https://www.bazelon.org/

Check back often as our resource list is always growing and changing!

This project was funded in part or whole by the WV Developmental Disabilities Council through a grant (#2201WVSCDD) from the U.S Administration for Community Living, Department of Health & Human Resources, Washington, D.C. 20201. Opinions expressed in the product are not necessarily those of the WV Developmental Disabilities Council nor of the federal Administration for Community Living.

interested in adding your business to our list of resources?

Click the link below to download a PDF application. Fill out all the information and email it to ddavis@jeremiahtreefoundation.org to add your listing to our resource page.

from the blog

jeremiah tree foundation
PO Box 971 / Ona, WV 25545
Deborah Davis | ddavis@jeremiahtreefoundation.org

86-3050824 501(c)3 Charitable Nonprofit in West Virginia offering support to families caring for a loved one with disabilities or chronic illness.

    

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